So Far, so Good

Talked to docs in charge of a few different organs tonight and this is what I took from the conversations:

The main concern right now is the kidneys. The kidney doc said that Joey’s kidneys might not be working due to either and/or both the immunosuppressant medication (which he needs to keep his new lungs), or an infection. This experience has been pretty hard on his body, so the kidneys are basically in shock. The nephrologist said that he’s seen it take anywhere from 2 days to 2 months for people’s kidneys to recover.

The ICU doc said that the cultures taken from inside Joey’s lungs have grown yeast (which everybody has in their bodies) and a fungus, which has yet to be cultured. No word yet on if it is good yeast, bad yeast, or just regular old yeast. The cultures take a while to come back. Positive news: after speaking with the lung docs, they told me that this fungus is not necessarily an infection, it could just be a colonization (not 100% sure what that means, but they assured me this was a good thing). Also, Joey’s white blood cell count is down today (indicates that if there was an infection it is getting better). His X-rays have been getting progressively clearer over the last couple of days.

Overall, the doctors are thinking things are going well. Right now, their main concern is the kidneys; that’s why he’s on dialysis (which we have been told will take at least 3-4 days before we notice any difference).

So there you have it. Hopefully you’re all not as confused as I was, but overall things sound positive.

All right. Good night.


8 thoughts on “So Far, so Good

  1. Lo and To September 18, 2007 / 12:24 am

    One thing we know for sure…Everyone is sending as many positive vibes your and Joey’s way as possible!..Think of you always..xox lo and to..

  2. Kimmy September 18, 2007 / 12:30 am

    Ummm…Happy Yeaster????

  3. Lynne Wilson September 18, 2007 / 1:30 am

    Thanks so much for making time for the updates, Kirsten. They are so much appreciated. You are so clear with what is going on. You must take notes! And you must must be exhausted. Hope you are looking after yourself as well. Hugs to you both.

    Lynne and Norm

  4. Kim September 18, 2007 / 9:38 am

    Keep positive. It’s a long road, but you are both doing great. All our best wishes continue to be with you. The updates are wonderful, thank you. I know it gets pretty exhausting for you, and know that your friends and family appreciate being in the loop.

  5. Sylvia Bandoian September 18, 2007 / 11:56 am

    Thats great news. One of my co-workers had a liver transplant and he told me that he also had problems with his kidneys for several months. He also said it took them about 4 months to get the anti-rejection drugs right for him. Everything sounds positive.


  6. Carole Varin September 18, 2007 / 1:02 pm

    Thanks for the up-date…I’m sure that they are difficult to write at times…you do a great job 🙂

    Kidneys eh? …Who would have ever thought that the kidneys would be a major issue after a (CF) lung transplant??? This disease can be quite confusing at times…Gotta’ role with the punches I guess 🙂

    Hang in there….happy to hear that the lungs are doing well…LOTS of positive energy & thoughts being sent your way!


  7. Ann McGuire September 18, 2007 / 1:29 pm

    Hi Joey & Kirstin,
    I just got your site from someone in the treadmill room. Your updates are great – so interesting and so informative. We’re all hoping and praying your kidneys sort themselves out soon. Keep up your spirits. It must be amazing to be able to breathe normally. People who’ve gone through this say that as long as you can breathe you can deal with the bumps on this long journey. Hope to see you in treadmill soon. Love, Ann
    P.S. Rebecca is in Vancouver for a couple of weeks.

  8. Andorea MacIver September 18, 2007 / 7:32 pm

    Hi Kirsten:

    Please pass a message onto Joey and let him know that Don and I are thinking about him and also about you.

    Take care both of you

    Andrea & Don (Ed’s sister)

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