Joey’s back at the out-patient physio gym now. He is slowly trying to build stamina again. This has been the only place where having loads of extra fluid has come in handy; he doesn’t need any leg weights yet, the fluid is doing that job for us.
Dialysis is ongoing five days a week. He still has quite a bit of weight to take off, but he’s getting there.
K & J
The man from the Red Cross has come with all of the equipment. I pretty much need a stepping stool to pee on my toilet now, but hey, it’s easier for the J-man now. Also could do gymnastics on the bar sticking out of the bathtub. Could…but won’t.
Have written out med schedule to keep it sorted in my head, but still tough to remember everything. Hard to juggle; there’s so many that you can’t take this one with that one, yada, yada, but we’ll get it sorted out once we figure out the new routine.
Lounging today, dialysis tonight.
K & J
Been very busy trying to sort out his meds just for tonight and tomorrow morning. This is going to take some serious getting used to. Also trying to sort out all of the stuff we need to monitor from now on and order tomorrow to make our place more accessible for Joey.
So that’s it. He’s home, we’re tired, and are going to bed as soon as we get tonight’s stuff sorted out.
So the plan is for Joey to get discharged tomorrow. They have it set up for him to continue going to dialysis 6 days a week as an outpatient (3 days hemodialysis, 3 days ultra filtration). I guess tomorrow we’ll be packing up and moving out of the hospital at some point during the day. Party!
Occupational therapy will be doing an assessment on him and will hopefully hook us up with all of the necessary equipment so that he can function at home more easily.
Other good news: urine output is increasing. Still nowhere near normal, but less miniscule than it was a few days ago. Celebrate good times, come on!
The rest of the week has been super busy. Joey’s been out of the hospital on day passes quite a bit; motoring around slowly, but surely. He dragged me to a movie (getting out of the seats at the theatre was interesting…thankfully there was a helpful usher handy and I learned some physio moves earlier in the day) and dinner.
Other exciting news: the transplant team said that as soon as Joey’s mobility improves enough that he is able function more independently, he can get discharged from the hospital! (I.e. getting out of seats, off of toilets, being able to do any stairs). We did a trial night at home yesterday, but it doesn’t seem like he’s quite ready yet. Joey should get more mobile once he gets more of this fluid off (he has about 25-30 extra pounds sitting in the lower half of his body). We’ll talk to the team in the morning and see what they think.
So that’s the score for today. Hope everybody has been having a fabulous weekend!
Joey was able to come home for dinner tonight. First time since operation #2! We are pretty excited. Surprised-but very happy-that he could get in and out of the car to make it here.
He also managed to do 20 minutes on the exercise bike today. A new, new personal best. (He was pretty darn stiff after he got off the bike, but hey, he did it).
1. Kirstin, Joey and two of the surgeons who did Joey’s operation: Dr. Boasquevisque and Dr. Yildirm (AKA: the Turkish Delight). Contrary to what you might think, they don’t carry that “Hero” bugers sign around with them, we just bumped into them at the food court and forced them to pose beside it.
2. Joey’s room. Holy card stock Batman! Thanks for all of the well wishes.
Joey went to the in-patient gym for physio today. First time since his bowel blockage a couple of weeks ago. He walked there himself and did 10 (that’s right, 10) minutes on the bike. A new post-transplant record! (Cue applause).