This Sucks

The MRCP showed that there was nothing obstructing the upper bile ducts. Since obstructions are now essentially ruled out, it implies that his jaundice (yellowness) is being caused by something at a cellular level. The docs figure that it is likely being caused by CF related liver disease (CFRLD). We asked what could be done about it; the only answer we have so far is a medication that he has been on for years. He’s already on a really high dosage of that, so basically there isn’t really a plan at this point. Extremely depressing.

Tomorrow morning the GI (=Gastroenterology, which = stomach doctor) team is going to consult Joey’s liver specialist to see if he has any other ideas. Hopefully they are able to get a hold of him. The prospect of Joey going home without a plan for making things better is not sitting well with either of us.

Will post again when and if anything else happens.

This sucks.

K & J

2 thoughts on “This Sucks

  1. Tracy September 30, 2009 / 1:01 pm

    I can’t stop thinking about you guys! Don’t come back unless you have a plan! There has to be something they can figure out! We are all thinking of you constantly! hope to hear something positive real soon…..

  2. Shelley September 30, 2009 / 3:09 pm

    It really does suck!!!

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