Our Vancouver trip was more informative than anticipated. In order to get an idea of when we should start looking at liver transplant as an option, Joey is supposed to do a specific set of blood work every 3-4 months from here on out. Basted on his last set of numbers, it was determined that now is NOT the time to start looking at transplant. Goodish news; nice that he doesn’t have to undertake those risks just yet, crummy that how he’s feeling now is probably the best he’s going to feel. Also discouraging that out lives kind of feel like they’re on hold all over again. Waiting to start waiting…again. We’re trying to get in a more positive mindset, as wallowing is of little benefit and really, we could be much worse off. Thus ends the pity party…for now.
So enough with the medical stuff. We have been making a point to try and have more fun lately. Forced ourselves out for Halloween and had a blast with April and Keith. They all dressed up like vampires and I was a cowgirl, which totally did not fit with the motif, so we splattered on some bite marks and I blended in a touch more. Originally had dressed up like “’80s April”, but then we decided I looked too normal, so we had to switch it up. Wandering around downtown and checking out all of the costumes was pretty entertaining.
Just got back from the couv again. Our plans for the night entail laying in bed, watching trashy TV, and possibly making some new earrings (okay, that last one is just me). Now that’s my idea of a good time.
Hope ya’ll are keeping well.
K & J