Self-centered post: I left my job today to go on medical leave. That was really, really hard for a number of different reasons. It was tough to leave the people I work with (both the wonderful staff and my little homies). It was also tough to say goodbye to what feels like the last strand of normalcy in my life to step back into a world consumed by CF and transplant. That said, it was what I had to do and I have no doubt in my mind that I made the right decision. But being “normal” was great while it lasted. Maybe this move will give me the chance to work on my memoirs. Potential titles: “Are you out there God? It’s me, Kirstin” or perhaps “Confessions of a CF Wife”. Don’t expect this to materialize any time soon – I’m joking.
Things are moving along on the donor front. One person started their assessment today; a couple of others are waiting for some test results. For those of you who are wondering, the first thing to do if you are considering being a donor is to get your blood type checked. To be a potential donor for Joey you must be type O. You should also read the live liver donor guide so that you are going into this process with all of the background knowledge you need to make a sound decision. Please email us at firstname.lastname@example.org if you would like a copy of the guide.
It is only possible for them to assess up to 3 donors at a time, so we are discussing it as a family and then passing on our shortlist to the transplant team. We are pretty much basing what we consider the best likely matches on the criteria I posted on March 30th. Like I mentioned last week, in a perfect world, the ideal candidate would be a male donor who is approximately 6’ tall. But hey, you can spend your whole life waiting for the perfect man, so we’re working with what we have! The 3 candidates will likely be paired down as medical tests are run and hopefully in the end we wind up with one who is a match. If not, we are back to square one with our list of amazing people who are patiently waiting in the wings.
Honestly, this whole process is pretty effed. It has been bizarre to put this out there, but the responses we have received have been so compassionate. This includes not just the people who have told us that they are willing to consider the possibility of being a donor, but those who have been making smaller gestures to show that they care. Our family is so, so appreciative.
And on that note, I will leave you with the following, just for fun:
Sweet dreams…or not.