A lot of people have been wondering what the next step is with Joey’s liver transplant. Recap: looking for potential live liver donor matches was put on hold a few months back until an effective plan for managing Joey’s current pain had been worked out. One of the key docs who was pushing for the transplant to happen quickly had told us that Joey should be off of IV pain meds. Unfortunately, that is essentially what he has gone home on, since none of the other pain control options worked for him. Major bummer. We have been told that the liver transplant team’s biggest concern is their ability to control his pain post-operatively. Some doctors figure that this won’t be a problem, other doctors figure that it will.
As it stands now, donor testing is still on hold. We have an appointment with BC Transplant at the end of the month. Our hope is that shortly after this appointment, we will have an answer as to whether or not the BC Transplant team is willing to perform Joey’s liver transplant. That is a big question mark that quite frankly, is extremely stressful.
In the meantime, we are trying to burry our heads in the sand and live in denial. So far this is going nicely. We are happy that he’s home and that we get a break from the majority of the in your face hospital stuff for the next little while. Thank you to everyone who keeps themselves in the loop by checking cfsucks. We appreciate that you keep yourselves in the know, so that we don’t have to keep on rehashing this information with everyone we see. That in itself can be extremely mentally draining. We love being at home, having the chance to get outside and breathe some fresh air while it is still warm, and do some low key visiting. Oh, and speaking of heavy denial – do not talk to us about fall either. It’s still summer until we say it ain’t. Even if Momma R did the Christmas draw last week. Damn her eager-beaverishness!
K & J