Right now, I think we are in the eye of the storm. All is eerily calm and we are just waiting. His liver hasn’t kicked in yet (we’ve been told that this can take a few days) and he is still sedated, so we are just waiting for him to wake up. Since both his liver and his kidneys (the filtering organs), aren’t doing their thang right now, this will likely take a while. Not sure when.
Some of his liver enzymes are down; others are up. We are told that this is normal for this stage of the game. Still waiting to see if it takes. His white cell count (high means you are fighting an infection…or a new, foreign liver) is down, so that’s a good sign. And I saw a few eyebrow raises this morning. I am convinced that this was directed at us. Joey has a habit of using his eyebrows to communicate when he is too tired to speak and he has company. Or when he has a tube down his throat. Maybe I am dreaming, but I choose to believe that I am right.
To tie you over when all is boring, here are some pics from the night we got the call:
Joey and Shane in the hall at St.Paul’s waiting for the ambulance
Joey and I
Owen, Keith, April, Taira, and Shaney
Tory and Leeah
Joey and Momma R
April, Keith, Karley, and Tory
Note that I posted the photos in color. I’ve been doing them in black and white or sepia for some time now to try and hide how sick Joey looks. It was the only way that he felt half assed okay about having any photos of him in existence during this time. Hard to keep your head positive when you have direct evidence flying in your face that you are sick. Figured I’d share openly at this point to illustrate how serious CF liver disease can be. Keep in mind that he was feeling the best that he had in a long time on Friday when these photos were taken. Still bad, but amazingly good for feeling so bad so consistently.
And now, in the spirit of tradition, back to black and white we go. Here we are at VGH after the transfer:
Joey “looking too happy” as he cracks into his care package from Koren, which arrived earlier in the day
Me making the most of the facilities. Don’t judge, it was late, I slept there, and knew I wouldn’t get the chance the following day. Plus they have free towels and hair/body wash (possibly dishsoap with a misleading label) in the washroom.
Joey catching some zzzs while we wait through the night to see if the surgery is a go
Gary trying to do the same. Doesn’t Momma R look impressed?
K & J